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井上さん@ネフローゼ
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こっとうえし君@再退院から1年
2018/10/07 10:15
0
特発性大腿骨頭壊死になりました。 この病気になられてる方や理解してくれる方なら誰でもフォロー大歓迎です。 1回目の手術201..
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難病トークチャンネル
2017/08/06 22:47
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日本中の難病患者さんたちを毎回ゲストにお迎えして難病生活の苦労や創意工夫、役立つ情報などを配信してません ★ 日曜の夜21:..
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べりょう
2017/08/03 23:23
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久々にツイッターしてみた
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ゆゆたん♪@ASコセンティクス💉ユーザー
2017/08/03 23:05
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難病🈯強直性脊椎炎闘病中の生物学的製剤💉ユーザーです。 杖とマスクとコルセットは身体の一部です😅💦
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